Hollis had another seizure today. She seems to be getting a cold, so that could be the cause of it. Going to see her pediatrician tomorrow to see if there's something beyond a cold brewing. She's been pretty out of it all week since the seizure on Monday. I'll be happy to get this week behind me.
Hollis had a really "big" seizure today, same pattern as the other three, at naptime, around 4PM. What we don't know is if she's having equally awful seizures during the night, because they are pretty quiet. She goes very stiff, eyes roll up and to the left, she turns red, and has very labored breathing. Even with her video monitor that would be pretty tough to catch. It's only because we are right on top of her when she naps (she sleeps in the guest room on the main floor at naptime) that we have witnessed the prior three.
Saturday Hollis had her first EEG since her surgery. EEG's are akin to torture for her: she has always had sensory issues with her head, and having all those leads attached just makes life hell. Even the marks that the tech writes on her scalp to know where to attach the leads is horrifying for her. This kid could have her blood drawn every hour and be much more content than having to go through EEGs.
It was during the application of the leads that Hollis cried for the first time in months. It made me think how often she used to cry before the surgery. She would have seizures that would result in injury, or would last a very long time, or come in clusters that wouldn't break for over an hour, and many of those times she would cry. She would also cry a lot more in fear, anticipation of something she didn't like, or just because she couldn't express herself any other way. What a gift for her not to have to cry as often anymore!
A beautiful girl with severe epilepsy and developmental delays as a result of a prenatal stroke. Underwent a left hemispherectomy on July 11, 2008. For additional history, here's the link - http://hollisbrainsurgery.blogspot.com/2008/07/bit-of-history.html